After 2 foot surgeries and a bone infection treated with 6 weeks of intravenous antibiotics over a year ago, I still have pain in my foot. I finally took the plunge and went to a doctor here in Colorado. He sent me to get an MRI done after seeing nothing on the X-ray he took at the office, and they found another bone lesion just like last time in Virginia. I have to go back Monday night for an MRI with contrast so that they can take a look and get a better idea of what it is. They have to make sure it’s not malignant. Hopefully they don’t have to remove it and biopsy it for that, although I think that may be wishful thinking on my part because the chances they will just leave it in there either way is probably infinitesimally small. It’s also possible that the bone infection is still there in which case I will probably need antibiotics again. I don’t know how they will handle that though.

The first time I had to have a PICC line was for the initial bone infection. It hurt and was uncomfortable, but it wasn’t a problem to get it in there. On the other hand, when they tried to get one in me last fall a few months after the bone infection, when I was in the hospital for two weeks with diverticulitis and they had to remove 8 inches of intestines, it simply didn’t work. I wasn’t doing well and they wanted to keep me in the hospital, but my veils weren’t accepting anymore IVs and they had to do a PICC line – It was a nightmare. There was a team of five people trying to give me a PICC line because one couldn’t get it in. They tried different places on both arms. They tried over and over again. In the end, there was blood all over me, the bed, the floor, the wall, the railing, everything. And there was still no PICC line in me. I got discharged because if the hospital isn’t administering something to you the insurance won’t pay, and no one could get anything in me. Needless to say, if they need another PICC line in me I want to be under anesthesia. I don’t know how you can get them to do that, but I do not want to be awake for that mess again. So I’m really, really hoping it isn’t still a bone infection. I don’t want to face that again. And at this point the infection would have been in there so long that it may have spread (my pain has spread) and I don’t know how long I’d be on IV antibiotics.

The doctor also says that he likely wants to go into my foot anyway to clear out the bone filler that the first doctor used (the one that screwed up my first foot surgery so bad I had shards of bone filler in my foot, and I got infected from the first surgeon’s very poor post op care. A second surgeon had to operate on me a month later and fix the first surgeon’s mess the best he could.) He said it may be causing further problems and probably wasn’t the best substance to use, that there should have been something that would help bone grow again naturally. He may dig that out of my foot and put something else in. At any rate, they have to see what this lesion really is and fix it – and see why this has been happening to me for years. Essentially, I don’t think I can get out of this without surgery. I am really hoping to avoid surgery, but it just doesn’t sound likely between the lesion, the possible infection, the wrong bone filler, and the pain that has continued on and spread for years now.

Foot surgery hurts badly. After one of my foot surgeries I cried for days. I’d sit on the sofa with my foot propped up, on plenty of pain killer and with an ice pack on my foot and wrapped for compression, and I would just cry. I’ve had my gallbladder removed, two intestinal surgeries, and a C section. None of them hurt as bad as that first foot surgery. I definitely felt the worst after the first intestinal surgery, but for pain the foot surgery topped them all. The second foot surgery wasn’t as bad, but the second doctor was doing more cleanup work than anything else. The surgery with the cutting was horrendous. Maybe I am a wimp, but I dread the thought of doing that again. I really hope I can get out of this, especially now that I’m in a two story house. Not being mobile sucks in a one story. In a two story it would be awful.  Praying there’s a way out of surgery.

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